European Reference Networks and phenylketonuria

27.11.2017

Question for written answer E-007278-17
to the Commission
Rule 130
Nessa Childers (S&D)

Could the Commission indicate whether it has sought or received any information from Member States’ competent authorities which would point to the feasibility and relevance of establishing a European Reference Network on phenylketonuria, as a rare metabolic condition, at a future call?

Does the Commission refer any such queries from Member States to the national authorities of their peers for the purposes of keeping them informed of the overall interest expressed in addressing rare conditions through European Reference Networks?