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European health data space

Oversigt 06-12-2023

On 3 May 2022, the Commission adopted a proposal for a regulation establishing the European health data space (EHDS). It aims at ensuring individuals' access to and control of their electronic personal data (primary use), while setting the framework for data re-use across the Union (secondary use). The European Parliament's Committee on the Environment, Public Health and Food Safety (ENVI) and Committee on Civil Liberties, Justice and Home Affairs (LIBE) adopted their joint report on 28 November ...

Overall, the IA describes the scope of the problem sufficiently well, and explains briefly, but convincingly, the need for EU action, although proportionality does not appear to have been dealt with in any depth. The IA does not define any operational objectives, which would illustrate what the deliverables of the specific policy actions are, although it identifies monitoring indicators for the specific objectives. The sufficient range of retained policy options is structured according to increasing ...

The European Health Data Space

Studie 08-12-2022

This research paper provides an assessment of the legislative proposal for “The European Health Data Space”, including linkages with other EU measures and with Member State rules and laws. It also includes recommendations on further steps needed in order to achieve, facilitate and improve health data sharing, exchange and re-use across the EU.

Regarding health data, its availability and comparability, the Covid-19 pandemic revealed that the EU has no clear health data architecture. The lack of harmonisation in these practices and the absence of an EU-level centre for data analysis and use to support a better response to public health crises is the focus of this study. Through extensive desk review, interviews with key actors, and enquiry into experiences from outside the EU/EEA area, this study highlights that the EU must have the capacity ...

Robots in healthcare: a solution or a problem?

Indgående analyse 15-03-2019

This report summarises the presentations and discussions of a workshop on the use of robots and AI in healthcare, held at the European Parliament in Brussels on Tuesday 19 February 2019. The aim of the workshop was to provide background information and advice for Members of the ENVI Committee on the status and prospects of applying robotic and artificial intelligence (AI) based technologies in healthcare. The first part of the workshop focused on the practical application of AI and robots in healthcare ...

Organoids are artificially grown organs that mimic the properties of real organs. What new possibilities for treating diseases, drug development, and personalised and regenerative medicine do organoids provide?

Personalised Medicine (PM - sometimes also termed as precision or stratified medicine) refers to the grouping of patients based on risk of disease, or response to therapy, using advanced diagnostic tests or techniques. The briefing gives an account of the initiatives taken at the EU to foster the advancement of this approach into daily practice.

This report summarises the presentations and discussions of a workshop on “Autoimmune Diseases – Modern Diseases”, held at the European Parliament in Brussels on Monday 25 September 2017. The aim of the workshop was to provide background and technical information and advice to the members of the ENVI Committee on the latest findings and trends in the field of autoimmune diseases, specifically concerning treatment and prevention of such diseases. The current state of play of autoimmune diseases in ...

This report summarises the presentations and discussions of a workshop on “Complementary and Alternative Therapies for Patients Today and Tomorrow”, held at the European Parliament in Brussels on Monday 16 October 2017. The aim of the workshop was to provide background and technical information and advice to the members of the ENVI Committee on the latest findings and trends in the field of complementary and alternative therapies. The current state of play of complementary and alternative therapies ...

Through advances in technology, big data has become a major asset and can open up numerous opportunities in all areas, but how can we use this in the context of health care and ensure it benefits everyone?