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What if mini-brains could help us understand dementia?

05-12-2017

Organoids are artificially grown organs that mimic the properties of real organs. What new possibilities for treating diseases, drug development, and personalised and regenerative medicine do organoids provide?

Organoids are artificially grown organs that mimic the properties of real organs. What new possibilities for treating diseases, drug development, and personalised and regenerative medicine do organoids provide?

Personalised Medicine - Current Status

30-11-2017

Personalised Medicine (PM - sometimes also termed as precision or stratified medicine) refers to the grouping of patients based on risk of disease, or response to therapy, using advanced diagnostic tests or techniques. The briefing gives an account of the initiatives taken at the EU to foster the advancement of this approach into daily practice.

Personalised Medicine (PM - sometimes also termed as precision or stratified medicine) refers to the grouping of patients based on risk of disease, or response to therapy, using advanced diagnostic tests or techniques. The briefing gives an account of the initiatives taken at the EU to foster the advancement of this approach into daily practice.

Autoimmune Diseases – Modern Diseases

23-10-2017

This report summarises the presentations and discussions of a workshop on “Autoimmune Diseases – Modern Diseases”, held at the European Parliament in Brussels on Monday 25 September 2017. The aim of the workshop was to provide background and technical information and advice to the members of the ENVI Committee on the latest findings and trends in the field of autoimmune diseases, specifically concerning treatment and prevention of such diseases. The current state of play of autoimmune diseases in ...

This report summarises the presentations and discussions of a workshop on “Autoimmune Diseases – Modern Diseases”, held at the European Parliament in Brussels on Monday 25 September 2017. The aim of the workshop was to provide background and technical information and advice to the members of the ENVI Committee on the latest findings and trends in the field of autoimmune diseases, specifically concerning treatment and prevention of such diseases. The current state of play of autoimmune diseases in Europe was highlighted during the first part of the workshop. Presentations focused on the public health prospective, and the possible causes of autoimmune diseases. The second part of the workshop focused on treatment and prevention of autoimmune diseases. This included presentations looking at the situation outside the US, and a focus on the lupus as a case study.

Údar seachtarach

Mr Matteo MASCOLO Ms Alicia MCNEILL Ms Meena FERNANDES

Complementary and alternative therapies for patients today and tomorrow

23-10-2017

This report summarises the presentations and discussions of a workshop on “Complementary and Alternative Therapies for Patients Today and Tomorrow”, held at the European Parliament in Brussels on Monday 16 October 2017. The aim of the workshop was to provide background and technical information and advice to the members of the ENVI Committee on the latest findings and trends in the field of complementary and alternative therapies. The current state of play of complementary and alternative therapies ...

This report summarises the presentations and discussions of a workshop on “Complementary and Alternative Therapies for Patients Today and Tomorrow”, held at the European Parliament in Brussels on Monday 16 October 2017. The aim of the workshop was to provide background and technical information and advice to the members of the ENVI Committee on the latest findings and trends in the field of complementary and alternative therapies. The current state of play of complementary and alternative therapies in Europe was highlighted during the first part of the workshop. Presentations focused on CAM in practice and academic research. The second part of the workshop focused on the policy and legal framework in Europe and the integration of CAM into EU healthcare systems.

Údar seachtarach

Alexandra SCHNEIDERS, Matteo MASCOLO, Alicia MCNEILL, Meena FERNANDES

What if your personal health tracker could save your life?

09-06-2017

Through advances in technology, big data has become a major asset and can open up numerous opportunities in all areas, but how can we use this in the context of health care and ensure it benefits everyone?

Through advances in technology, big data has become a major asset and can open up numerous opportunities in all areas, but how can we use this in the context of health care and ensure it benefits everyone?

Living with a Neurological Brain Disorder: Taking Control of Your Life

14-10-2016

This report summarises the presentations and discussions of the workshop on the neurological brain disorders, held at the European Parliament in Brussels on Wednesday 12 October 2016. The aim of the workshop was to provide background information about the main characteristics of neurological brain disorders, as well as to identify new strategies and innovative tools to better support the prevention and treatment of these diseases. The latest data, trends, and challenges in the field of neurological ...

This report summarises the presentations and discussions of the workshop on the neurological brain disorders, held at the European Parliament in Brussels on Wednesday 12 October 2016. The aim of the workshop was to provide background information about the main characteristics of neurological brain disorders, as well as to identify new strategies and innovative tools to better support the prevention and treatment of these diseases. The latest data, trends, and challenges in the field of neurological brain disorders were highlighted during the first part of the workshop. Moreover, speakers illustrated how mHealth tools can better support treatment for patients affected by brain disorders. Successful examples of mHealth tools, such as the app “MyDystonia”, were also presented. The second part of the workshop focused on the potential offered by mHealth for patients with neurological brain disorders. Relevant initiatives carried out by the European Commission were presented, and the importance of involving patients in the designing of new mHealth tools for the treatment of brain disorders was also discussed. This workshop and the respective document were prepared by the Policy Department A at the request of the Committee on Environment, Public Health and Food Safety.

Údar seachtarach

Alojz PETERLE, Linda McAVAN, Nessa CHILDERS, Frédéric DESTREBECQ, Monika BENSON, Nicholas MEYER, Jean-Pierre LIN, Terje PEETSO and Nicola BEDLINGTON

Data Saves Lives: The Impact of the Data Protection Regulation on Personal Data Use in Cancer Research

15-01-2016

This report summarises the presentations and discussions of the workshop on data saves lives, held at the European Parliament in Brussels on Thursday 19 November 2015. The aim of the workshop was to provide background information and advice regarding the proposed General Data Protection Regulation and the impact it may have on the use of personal health data in cancer research. During the first part of the workshop the policy context and state of play of the proposed new Regulation were presented ...

This report summarises the presentations and discussions of the workshop on data saves lives, held at the European Parliament in Brussels on Thursday 19 November 2015. The aim of the workshop was to provide background information and advice regarding the proposed General Data Protection Regulation and the impact it may have on the use of personal health data in cancer research. During the first part of the workshop the policy context and state of play of the proposed new Regulation were presented. An update on the Trilogue discussions and latest amendments to the text of the Regulation were given; obstacles and opportunities for harmonisation of cancer data were also discussed. The second part of the workshop focused on the impact of the proposed Regulation on cancer research. Access to data, ethical standards, data storage, and a European project on cancer survival were covered during this session. All presentations highlighted the need for a broad consent (a one-time consent given by data subjects to allow the use of their data for a variety of research studies which are subject to strict criteria) in order to make cancer research possible. Finally, future developments based on the experience of healthcare providers, patients and the industries were discussed. Possible practical solutions were given that could solve the obstacles of the proposed Regulation faced by the cancer research community.

Údar seachtarach

Paola BANFI, Rachel DEMPSEY, Manon EMONTS and Hana SPANIKOVA

Personalised medicine: The right treatment for the right person at the right time

08-10-2015

'Personalised medicine' refers to a medical approach that uses molecular insights into health and disease to guide decisions with regard to the prediction, prevention, diagnosis and treatment of illnesses. Genetic factors play a role in most human diseases, with gene variations contributing to their incidence or course. New tools harnessed by personalised medicine include '-omics' technologies, which seek to define and explain the molecular mechanisms of the human body, and biomarkers, allowing us ...

'Personalised medicine' refers to a medical approach that uses molecular insights into health and disease to guide decisions with regard to the prediction, prevention, diagnosis and treatment of illnesses. Genetic factors play a role in most human diseases, with gene variations contributing to their incidence or course. New tools harnessed by personalised medicine include '-omics' technologies, which seek to define and explain the molecular mechanisms of the human body, and biomarkers, allowing us to subdivide patients into groups according to their likely response to a specific treatment, and so decide on the best-suited medication. Integrating advances in molecular technology into clinical practice comes with challenges, namely the translational gap, data protection, regulatory clarity and cost. Moreover, it is considered essential to educate patients (to acquire health literacy) as well as healthcare professionals (both in terms of providing them with undergraduate education and with continuous opportunities to advance their skills). EU initiatives in the field of personalised medicine include the Innovative Medicines Initiative (IMI), financial support to major research projects, and participation in international consortia. The Luxembourg Council Presidency has made personalised medicine one of its health priorities.

eHealth – Technology for health

12-03-2015

'eHealth' is a recently-coined term for the use of information and communication technology (ICT) in health, and refers to an interdisciplinary field with multiple uses. It aims to improve the quality of healthcare and make health systems more efficient and effective. For patients, eHealth has the potential to bring them improved awareness of their condition and foster their involvement in the care process. It will also facilitate access to healthcare for certain groups of people, help the elderly ...

'eHealth' is a recently-coined term for the use of information and communication technology (ICT) in health, and refers to an interdisciplinary field with multiple uses. It aims to improve the quality of healthcare and make health systems more efficient and effective. For patients, eHealth has the potential to bring them improved awareness of their condition and foster their involvement in the care process. It will also facilitate access to healthcare for certain groups of people, help the elderly live independently for longer and help adults with dementia to stay mentally fit. More generally, eHealth will support patient mobility and facilitate cross-border healthcare. eHealth will allow health professionals to interact remotely with patients and other professionals, access specialised knowledge and facilitate research. Moreover, it has the potential to increase the effectiveness and efficiency of healthcare, thus alleviating the burden on European health budgets, and should foster growth in the areas of research, health, medicine and ICT. Among the limitations and drawbacks of eHealth are the risks of impersonality and isolation, which may be detrimental to the importance of preserving a human dimension in healthcare and contrary to the desire to reinforce the patient-doctor relationship. eHealth tools will not bring the expected benefits if they are not user-centric, user-friendly and universally accessible. Furthermore, there is a need to enhance self-confidence in eHealth use and to raise awareness of, and training in, eHealth. There are also reservations regarding privacy and confidentiality. And lastly, it is essential to guarantee the security and protection of health-related data, to build confidence and to ensure patients consent to the use of their data. The outlook for eHealth covers several perspectives: political, technological, economic, research, international cooperation and stakeholders.

Proceedings of the Workshop on "Towards a European Cancer Information System"

15-04-2014

This document summarises the presentations and discussions at the Workshop on “Towards a European Cancer Information System”, held at the European Parliament on 12 February 2014 for the Committee on Environment, Public Health and Food Safety (ENVI). The aim of the workshop was to exchange views on the progress made so far in the area of cancer registries in Europe and the future challenges for the development of a European Cancer Information System, including issues related to the harmonisation ...

This document summarises the presentations and discussions at the Workshop on “Towards a European Cancer Information System”, held at the European Parliament on 12 February 2014 for the Committee on Environment, Public Health and Food Safety (ENVI). The aim of the workshop was to exchange views on the progress made so far in the area of cancer registries in Europe and the future challenges for the development of a European Cancer Information System, including issues related to the harmonisation and centralisation of cancer data, and data protection.

Údar seachtarach

Stefano ROSSO (European Network of Cancer Registries (ENCR), Piedmont Cancer Registry, ‘Centro di Prevenzione Oncologica - CPO’, Torino, Italy) , Manola BETTIO (Institute for Health and Consumer Protection - IHCP, JRC-EC) , Hans STORM (Association of Nordic Cancer Registries - ANCR, Danish Cancer Society, Denmark) , Milena SANT (Data and Information WP in European Partnership for Action Against Cancer - EPAAC, Fondazione IRCCS ‘Istituto Nazionale dei Tumori - INT’, Milan, Italy) , David FORMAN (International Association of Cancer Registries - IACR, Cancer Information Section, International Agency for Research on Cancer - IARC, France) , Jana PELOUCHOVA (European Cancer Patient Coalition - ECPC, Diagnoza CML (chronic myeloid leukemia) Patient Society, Czech Republic)

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