23-02-2021 13:45
Hearing: From lab to life: transforming childhood, adolescent and rare cancer care
Brussels, European Parliament, József Antall (6Q2) and with remote participation
On 23 February, the Special Committee on Beating Cancer put the spotlight on paediatric, adolescent and rare cancers. The public hearing addressed research, treatment and rare cancer care and the rights and needs of patients, parents and survivors and caregivers.
Though there are many different rare cancers, due to their rarity they share similar problems concerning diagnosis and treatment. On the patients' side it leads to difficulties in accessing timely and accurate diagnosis, highly specialised care and adequate treatments. In healthcare systems, it manifests in poor research opportunities, difficulties in clinical trials and lack of therapies.
You can watch the hearing again by clicking on the links below.
Paediatric cancers are all rare cancers and share the same challenges; but given their age-related, biological, clinical and organisational specificities, they need to be addressed distinctively.
You can watch the hearing again by clicking on the links below.
- Programme (PDF - 259 KB)
- BECA Background note on paediatric and rare cancers (PDF - 1 MB)
- Watch the hearing again: PART 1 from 13.45 - 16.15 (Interpretation in FR – DE – IT – NL – EN – EL – ES – CS – LT – PL – RO)
- Watch the hearing again: PART 2 from 16.45 -18.15 (Interpretation in FR – DE – IT – NL – EN – EL – ES – CS – LT – PL – RO)
- Presentation Prof. Gilles Vassal (PDF - 350 KB)
- Presentation Prof. Carmelo Rizzari (PDF - 1 MB)
- Presentation Prof. Młynarski : Outcome in paediatric cancer: how to improve survival and quality survival (PDF - 677 KB)
- Presentation Dr Eva Steliarova-Foucher: Data for childhood cancer research and policies (PDF - 1 MB)
- Speech Ms Delphine Heenen (PDF - 571 KB)
- Presentation Dr Andrea Ferrari: Putting Adolescents and Young Adults (AYA) under Spotlight (PDF - 1 MB)
- Speech Ms Patricia Blanc (PDF - 702 KB)
- Presentation Prof. Alicja Chybicka (PDF - 4 MB)
- Presentation Dr Lydie Meheus: Rare cancers in need for solutions (PDF - 678 KB)
- Biographies of the experts (PDF - 820 KB)
- Photos of the hearing © European Union 2021 – European Parliament
- Poster (IMAGE - 396 KB)