23-02-2021 13:45
Hearing: From lab to life: transforming childhood, adolescent and rare cancer care

Brussels, European Parliament, József Antall (6Q2) and with remote participation
Teddybear, yellow ribbon and hands on a background of yellow, the international colour for childhood cancer Teddybear, yellow ribbon and hands on a background of yellow, the international colour for childhood cancer
Cancer remains the principal cause of death by disease in children beyond the age of one © image used under the license from Adobe Stock

On 23 February, the Special Committee on Beating Cancer put the spotlight on paediatric, adolescent and rare cancers. The public hearing addressed research, treatment and rare cancer care and the rights and needs of patients, parents and survivors and caregivers.

Though there are many different rare cancers, due to their rarity they share similar problems concerning diagnosis and treatment. On the patients' side it leads to difficulties in accessing timely and accurate diagnosis, highly specialised care and adequate treatments. In healthcare systems, it manifests in poor research opportunities, difficulties in clinical trials and lack of therapies.

Paediatric cancers are all rare cancers and share the same challenges; but given their age-related, biological, clinical and organisational specificities, they need to be addressed distinctively.

Rare cancers represent approximately 25% of all cancer cases, making it a major public health issue.
You can watch the hearing again by clicking on the links below.