Go back to the Europarl portal

Choisissez la langue de votre document :

  • bg - български
  • es - español
  • cs - čeština
  • da - dansk
  • de - Deutsch
  • et - eesti keel
  • el - ελληνικά
  • en - English (Selected)
  • fr - français
  • ga - Gaeilge
  • hr - hrvatski
  • it - italiano
  • lv - latviešu valoda
  • lt - lietuvių kalba
  • hu - magyar
  • mt - Malti
  • nl - Nederlands
  • pl - polski
  • pt - português
  • ro - română
  • sk - slovenčina
  • sl - slovenščina
  • fi - suomi
  • sv - svenska
Parliamentary questions
PDF 41kWORD 18k
29 May 2020
 E-000665/2020
Answer given by Ms Kyriakides
on behalf of the European Commission
Question reference: E-000665/2020

1. The European Reference Network on rare endocrine conditions (Endo-ERN) addresses Genetic Diabetes and Genetic Endocrine Syndromes and aims to provide access to expertise for patients with rare endocrine disorders in Europe. It is also developing a patient registry on rare endocrine diseases co-funded through the Health Programme(1). InterConnect(2) established a global network that facilitates the coordination of population research on the interaction between genetic and environmental factors in the aetiology of obesity and diabetes. The project has a strong component for developing an online registry of studies of gene-environment interaction as well as data discovery and method harmonisation. The registry has been populated with studies on diabetes or obesity, including linkage of metadata from minorities, migrant population, pregnant women, and children.

2. The Commission is working towards the creation of a European Health Data Space to promote the use of health data for better healthcare, better research and better policymaking while protecting the personal data of patients. The digitalisation of healthcare system and ensuring the follow-up of patients, as well as federating different types of data, from registries or electronic health records could contribute to improving the management and support for diabetes patients. It is also important to empower citizens to access their health data and to ensure the portability of their data, including from wearable devices, which can improve the disease case-management, including for diabetes.

(1)https://ec.europa.eu/health/funding/programme_en
(2)https://cordis.europa.eu/project/id/602068
Last updated: 2 June 2020Legal notice - Privacy policy